Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology

Temporal Dynamics of Subtle Cognitive Change: Validation of a User-Friendly Multidomain Digital Assessment Using an Alcohol Challenge

John Frederick Dyer, Florentine Marie Barbey, Ayan Ghoshal, Ann Marie Hake, Bryan J Hansen, Md Nurul Islam, Judith Jaeger, Rouba Kozak, Hugh Marston, Mark Moss, Viet Nguyen, Rebecca Louise Quinn, Leslie A Shinobu, Elizabeth Tunbridge, Brian Murphy, Niamh Kennedy

J Med Internet Res 2025 (Jun 12); 27:e55469

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Research Electronic Data Capture (REDCap) for Population-Based Data Collection in Low- and Middle-Income Countries: Opportunities, Challenges, and Solutions

Ha Thanh Le, Dung Viet Tien Vu, Thi Ngoc Anh Nguyen, Hang Tran Thi, Tan Viet Nguyen, Thao Phuong Tran, Aria Kekalih, Samita Rijal, Dewi Friska, Raph L. Hamers, Abhilasha Karkey, Mary Chambers, Jennifer Ilo Van Nuil, SPEAR and CoAct Team, Sonia Lewycka

J Med Internet Res 2025 (Jun 11); 27:e65377

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Feasibility of an Electronic Patient-Reported Outcome System in People Living With HIV: Retrospective Analysis of a Mobile App-Based Pilot Study

Yusuke Yoshino, Yoshitaka Kimura, Yoshitaka Wakabayashi, Takatoshi Kitazawa

JMIR Form Res 2025 (Jun 10); 9:e71493

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Caregivers’ Perceptions of Clinical Symptoms, Disease Management, and Quality of Life Impact in Cases of Cyclin-Dependent Kinase-Like 5 Deficiency Disorder: Cross-Sectional Online Survey

Sam Amin, Carol-Anne Partridge, Helen Leonard, Jenny Downs, Helen Allvin, Valentine Ficara, Emilie Pain, Minna A Korolainen

JMIR Form Res 2025 (Jun 10); 9:e72489

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Leveraging Cognitive and Speech Ecological Momentary Assessment in Individuals With Phenylketonuria: Development and Usability Study of Cognitive Fluctuations in a Rare Disease Population

Shifali Singh, Lisa Kluen, Katelin Curtis, Raquel Norel, Carla Agurto, Elizabeth Grinspoon, Zoe Hawks, Shawn Christ, Susan Waisbren, Guillermo Cecchi, Laura Germine

JMIR Form Res 2025 (Jun 03); 9:e63644

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The Potential to Leverage Real-World Data for Pediatric Clinical Trials: A Proof-of-Concept Study

Jens Declerck, Joanne Lee, Anando Sen, Avril Palmeri, Rianne Oostenbrink, Viviana Giannuzzi, Simon Woodworth, Salma Malik, Fenna Mahler, Beate Aurich, Rebecca Leary, Dipak Kalra, Volker Straub

J Med Internet Res 2025 (May 30); 27:e72573

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A Mixed Method Survey of Characteristics of HIV Care Facilities: Medical Monitoring Project Facility Survey Project

Dustin Williams, John Weiser, Timothy McManus, Hanna B Demeke, Darryl Creel, Jason Craw, Milton Cahoon, Linda Beer

JMIR Form Res 2025 (May 29); 9:e52123

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Augmenting Engagement in Decentralized Clinical Trials for Atrial Fibrillation: Development and Implementation of a Programmatic Architecture

Toluwa Daniel Omole, Andrew Mrkva, Danielle Ferry, Erin Shepherd, Jessica Caratelli, Noah Davis, Richmond Akatue, Timothy Bickmore, Michael K Paasche-Orlow, Jared W Magnani

JMIR Cardio 2025 (May 12); 9:e66436

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Online Health Information–Seeking Behaviors Among the Chongqing Population: Cross-Sectional Questionnaire Study

Honghui Rong, Lu Lu, Miao He, Tian Guo, Xian Li, Qingliu Tao, Yixin Li, Chuanfen Zheng, Ling Zhang, Fengju Li, Dali Yi, Enyu Lei, Ting Luo, Qinghua Yang, Ji-an Chen

JMIR Form Res 2025 (May 05); 9:e56028

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Characterizing Patient-Reported Fatigue Using Electronic Diaries in Neurodegenerative and Immune-Mediated Inflammatory Diseases: Observational Study

Adrien Bennetot, Rana Zia Ur Rehman, Robbin Romijnders, Zhi Li, Victoria Macrae, Kristen Davies, Wan-Fai Ng, Walter Maetzler, Jennifer Kudelka, Hanna Hildesheim, Kirsten Emmert, Emma Paulides, C Janneke van der Woude, Ralf Reilmann, Svenja Aufenberg, Meenakshi Chatterjee, Nikolay V Manyakov, Clémence Pinaud, Stefan Avey

JMIR Form Res 2025 (May 05); 9:e65879

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Electronic Implementation of Patient-Reported Outcome Measures in Primary Health Care: Mixed Methods Systematic Review

Maxime Sasseville, Wilfried Supper, Jean-Baptiste Gartner, Géraldine Layani, Samira Amil, Peter Sheffield, Marie-Pierre Gagnon, Catherine Hudon, Sylvie Lambert, Eugène Attisso, Steven Ouellet, Mylaine Breton, Marie-Eve Poitras, Pierre-Henri Roux-Lévy, James Plaisimond, Frédéric Bergeron, Rachelle Ashcroft, Sabrina T. Wong, Antoine Groulx, Jean-Sébastien Paquette, Natasha D'Anjou, Sylviane Langlois, Annie LeBlanc

J Med Internet Res 2025 (May 05); 27:e63639

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Viability of Web-Based Respondent-Driven Sampling of Belgian Men Who Have Sex With Men: Process Evaluation

Estrelle Thunnissen, Veerle Buffel, Linda Campbell, Bea Vuylsteke, Philippe Bos, Edwin Wouters

J Med Internet Res 2025 (May 05); 27:e60884

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Challenging the Continued Usefulness of Social Media Recruitment for Surveys of Hidden Populations of People Who Use Opioids

Elizabeth D Nesoff, Joseph J Palamar, Qingyue Li, Wenqian Li, Silvia S Martins

J Med Internet Res 2025 (Apr 30); 27:e63687

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Using Social Media to Recruit a Diverse Sample of Participants for a Mobile Health (mHealth) Intervention to Increase Physical Activity: Exploratory Study

Laura Pathak, Rosa Hernandez-Ramos, Karina Rosales, Jose Miramontes-Gomez, Faviola Garcia, Vivian Yip, Suchitra Sudarshan, Anupama Gunshekar Cemballi, Courtney Lyles, Adrian Aguilera

JMIR Mhealth Uhealth 2025 (Apr 28); 13:e56329

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Uncovering Social States in Healthy and Clinical Populations Using Digital Phenotyping and Hidden Markov Models: Observational Study

Imogen E Leaning, Andrea Costanzo, Raj Jagesar, Lianne M Reus, Pieter Jelle Visser, Martien J H Kas, Christian F Beckmann, Henricus G Ruhé, Andre F Marquand

J Med Internet Res 2025 (Apr 28); 27:e64007

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Ecological Momentary Assessment of Parental Well-Being and Time Use: Mixed Methods Compliance and Feasibility Study

Laura Altweck, Samuel Tomczyk

JMIR Form Res 2025 (Apr 23); 9:e67451

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Italian Medical Professionals' Practices, Attitudes, and Knowledge in Travel Medicine: Protocol for a National Survey

Francesco Baglivo, Luigi De Angelis, Federico Vannini, Antonello Agostini, Antonio Todaro, Eleonora Torri, Giulio Alberto Gianolio Lopez, Margherita Fui, Alberto Tomasi, Caterina Rizzo

JMIR Res Protoc 2025 (Apr 21); 14:e59511

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Using Social Media to Engage and Enroll Underrepresented Populations: Longitudinal Digital Health Research

Christiana Harry, Sarah Goodday, Carol Chapman, Emma Karlin, April Joy Damian, Alexa Brooks, Adrien Boch, Nelly Lugo, Rebecca McMillan, Jonell Tempero, Ella Swanson, Shannon Peabody, Diane McKenzie, Stephen Friend

JMIR Form Res 2025 (Apr 15); 9:e68093

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Approach to Design and Evaluate Digital Tools to Enhance Young Adult Participation in Clinical Trials: Co-Design and Controlled Intercept Study

Tim Mackey, Raphael E Cuomo, Qing Xu, Tiana J McMann, Zhuoran Li, Mingxiang Cai, Christine Wenzel, Joshua S Yang

J Med Internet Res 2025 (Apr 11); 27:e70852

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Development of Digital Strategies for Reducing Sedentary Behavior in a Hybrid Office Environment: Modified Delphi Study

Iris Parés-Salomón, Cristina Vaqué-Crusellas, Alan Coffey, Bette Loef, Karin I Proper, Anna M Señé-Mir, Anna Puig-Ribera, Kieran P Dowd, Judit Bort-Roig

JMIR Hum Factors 2025 (Apr 08); 12:e59405

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