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Carers of people with CDC report feelings of uncertainty, anxiety, stress, and guilt [10,21], and where care recipients have a reduced insight into their cancer diagnosis and prognosis, carers report feeling as though they are carrying the emotional burden alone, contributing to feelings of loneliness and isolation [21,22].
JMIR Cancer 2025;11:e72217
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Open Online Courses for Informal Carers: Systematic Integrative Review
Despite their popularity, evidence on the effectiveness and impact of open online courses for informal carers is limited. While several reviews have investigated the application of open online courses in health education [24-26], to date, there have been no reviews that have focused on open online courses for informal carers. Lamura et al [27,28] highlight the potential of novel technological solutions to empower and support carers.
J Med Internet Res 2025;27:e72808
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Reference 39: Peer support for carers: a qualitative investigation of the experiences of carers and peercarers
JMIR Aging 2024;7:e60050
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Carers of people with cancer may assume significant responsibilities in not only coordinating and organizing care, but also in providing direct clinical care (eg, administering medications) [4,6].
Becoming a carer is a role that many feel unprepared for, and are overwhelmed by, with implications for health and well-being [7,8]. Carers experience depression, anxiety, and distress, commonly at higher rates than the general population [9-11].
JMIR Res Protoc 2024;13:e56403
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The collective impact of this group (often termed “informal carers”) in the United Kingdom is a saving to health and social care services of £162 billion (US $206 billion, 1£=US $1.27) per year [2], a figure comparable to the entire budget for the National Health Service England [3]. However poignant this contribution is, the support does not come without personal costs to carers. Many carers report poor mental and physical health, a finding also supported by systematic review evidence [4,5].
JMIR Res Protoc 2024;13:e53727
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Mobile Health Apps, Family Caregivers, and Care Planning: Scoping Review
Reference 31: A smartphone app to support carers of people living with cancer: a feasibility and usability Reference 53: Development of a smartphone app for informal carers of people with cancer: processes andcarers
J Med Internet Res 2024;26:e46108
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Technology Use Among Older Adults and Their Caregivers: Cross-Sectional Survey Study
carers
JMIR Aging 2024;7:e50759
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Online Support Groups for Family Caregivers: Scoping Review
A recent review of the National Carers Strategy in Ireland by family caregivers themselves showed that they want to see new and advanced possibilities for online support to be included in the next iteration of this policy [24].
Despite this growth, there is no consensus on what factors or characteristics of OSGs contribute to the development of social support [14,25].
J Med Internet Res 2023;25:e46858
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