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Usability and Impact of the Web-Based Dementia Foundations Educational Program in Personal Support Workers (PSWs), PSW Trainees, and Care Companions: Quasi-Experimental Study

Usability and Impact of the Web-Based Dementia Foundations Educational Program in Personal Support Workers (PSWs), PSW Trainees, and Care Companions: Quasi-Experimental Study

The experienced PSWs and other paid caregivers that comprised the Ottawa LTC and u Carenet cohorts have likely been working with people with dementia for many years and have had ample time to develop personal attitudes toward dementia, as previous research has shown that working with and having ongoing and meaningful interactions with individuals living with dementia are key to fostering a change in attitudes [26,28].

Anthony J Levinson, Stephanie Ayers, Sandra Clark, Patricia Gerantonis, Amy Schneeberg, Richard Sztramko

JMIR Aging 2025;8:e67889

Quality of Life Among Family Caregivers of Individuals With Rare Diseases: Web-Based Population Study on the Validity and Reliability of the Polish World Health Organization Quality of Life-BREF Questionnaire

Quality of Life Among Family Caregivers of Individuals With Rare Diseases: Web-Based Population Study on the Validity and Reliability of the Polish World Health Organization Quality of Life-BREF Questionnaire

The second most prevalent response was “neither poor nor good,” with 31.5% (n=41) of male and 39.5% (n=321) of female caregivers choosing this option. However, a higher proportion of female caregivers reported a “poor” Qo L (n=108, 13.3%) compared to male caregivers (n=19, 14.6%). The percentage of caregivers who rated their Qo L as “very poor” was relatively low overall, at 2.5% (n=24), with male caregivers (n=7, 5.4%) more likely to report this than female caregivers (n=17, 2.1%).

Piotr Jabkowski, Jan Domaradzki, Dariusz Walkowiak

JMIR Public Health Surveill 2025;11:e72590

COVID-19–Relevant Insights Into the Elevated Risk of Accidental Injuries in Survivors of SARS and Their Relatives in Taiwan: Retrospective Cohort Study

COVID-19–Relevant Insights Into the Elevated Risk of Accidental Injuries in Survivors of SARS and Their Relatives in Taiwan: Retrospective Cohort Study

We hypothesize that the incidence of falls increased among the older population due to the decreased availability of professional caregivers during COVID-19. With fewer family members and professional help available, older patients may have been more susceptible to falling. Additionally, in this study, the risk of falls remained elevated 15 years after tracking patients with SARS, which we attribute to the physical weakness resulting from the illness.

Chieh Sung, Chi-Hsiang Chung, Chien-An Sun, Chang-Huei Tsao, Daphne Yih Ng, Tsu-Hsuan Weng, Li-Yun Fann, Fu-Huang Lin, Wu-Chien Chien

JMIR Public Health Surveill 2025;11:e70608

Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial

Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial

One population for whom telehealth services offer critical benefits are NGC caregivers. Although the elevated mental health needs of NGC caregivers predated the COVID-19 pandemic [7], the pandemic caused them to face crisis-level breakdowns in support and intervention services that have continued to impact families [8].

Bridgette Kelleher, Kaleb Emerson, Lyndsey N Graham, Veronika Vozka, Anne Wheeler, William Fadel, Daniel Foti, Isha Metzger, Mandy Rispoli, Wendy Machalicek, Laurie McLay, Sean Lane, Wei Siong Neo, Allie Carter, Lisa Brown, Jennifer Brown, Laura Lee McIntyre, Elizabeth Salwitz, Gloria Dietz, Riley Naughton, Katlyn Peek, Nicole Hollins, Emma Woodford

JMIR Res Protoc 2025;14:e64360

Perspectives and Experiences of Family Caregivers Using Supportive Mobile Apps in Dementia Care: Meta-Synthesis of Qualitative Research

Perspectives and Experiences of Family Caregivers Using Supportive Mobile Apps in Dementia Care: Meta-Synthesis of Qualitative Research

Future studies should explore mobile implementations to enhance support for family caregivers of persons with dementia. Although mobile apps demonstrate considerable potential in supporting family caregivers, research findings remain inconsistent.

Haifei Shen, Yi Han, Wen Shi, Jiangxuan Yu, Xueqi Shan, Hongyao Wang, Junjie Wang

JMIR Mhealth Uhealth 2025;13:e65983

Feasibility and Usability of a Web-Based Peer Support Network for Care Partners of People With Serious Illness (ConnectShareCare): Observational Study

Feasibility and Usability of a Web-Based Peer Support Network for Care Partners of People With Serious Illness (ConnectShareCare): Observational Study

Reference 1: Valuing the invaluable: 2023 update strengthening supports for family caregivers(https:/ Reference 3: Interventions with family caregivers of cancer patients: meta-analysis of randomized trials Reference 5: Online support groups for family caregivers: scoping review Reference 9: CHESS improves cancer caregivers’ burden and mood: results of an eHealth RCT Reference 11: Dementia caregivers’ responses to 2 internet-based intervention programscaregiversSupporting Informal Care and Caregivers Supporting Home Care and Family Caregivers

Aricca D Van Citters, Megan M Holthoff, Colleen Young, Sarah M Eck, Amelia M Cullinan, Stephanie Carney, Elizabeth A O'Donnell, Joel R King, Malavika Govindan, David Gustafson, Stephanie C Tomlin, Anne B Holmes, Ann D Bradley, Brant J Oliver, Matthew M Wilson, Eugene C Nelson, Amber E Barnato, Kathryn B Kirkland

JMIR Form Res 2025;9:e70206

Internet-Based Cognitive Behavioral Therapy Interventions for Caregivers of Patients With Cancer: Scoping Review

Internet-Based Cognitive Behavioral Therapy Interventions for Caregivers of Patients With Cancer: Scoping Review

The diagnosis and long-term treatment of cancer not only cause adversity for patients but also impose psychological stress and burdens on caregivers [2]. Caregivers of patients with cancer refer to informal caregivers, including family members, partners, or friends. They provide unpaid social, emotional, and economic support to a family member with cancer requiring care and are involved throughout the patient’s symptom management and nursing [3,4].

Chun Tong Shen, Jian Shi, Feng Xia Liu, Xiao Meng Lu

JMIR Cancer 2025;11:e67131

Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

When asked about telehealth, all patients and caregivers reported having used telehealth and found it time-saving and convenient. However, for important appointments, a face-to-face conversation was preferred. Patients and caregivers expressed the need for social connectedness and suggested these may be met by a digital platform.

Mahima Kalla, Ashleigh Bradford, Verena Schadewaldt, Kara Burns, Sarah C E Bray, Sarah Cain, Heidi McAlpine, Rana S Dhillon, Wendy Chapman, James R Whittle, Katharine J Drummond, Meinir Krishnasamy

JMIR Cancer 2025;11:e53690