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This paper is in the following e-collection/theme issue:

Social Media in Aging (78) Peer-to-Peer Support and Online Communities (1011) Home Care (242) Tools and Questionnaires in Human Factors Evaluation (109) Dementia and Cognitive Decline (911) Supporting Informal Care and Caregivers (528) Interventions and Support for Informal Caregivers of People with Mental Illness (156) Supporting Home Care and Family Caregivers (310)

Published on in Vol 7 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/55169, first published .
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Perceptions and Utilization of Online Peer Support Among Informal Dementia Caregivers: Survey Study

Perceptions and Utilization of Online Peer Support Among Informal Dementia Caregivers: Survey Study

Authors of this article:

Zhijun Yin1, 2 Author Orcid Image ;   Lauren Stratton3 Author Orcid Image ;   Qingyuan Song2 Author Orcid Image ;   Congning Ni2 Author Orcid Image ;   Lijun Song4 Author Orcid Image ;   Patricia Commiskey5 Author Orcid Image ;   Qingxia Chen1, 6 Author Orcid Image ;   Monica Moreno7 Author Orcid Image ;   Sam Fazio8 Author Orcid Image ;   Bradley Malin1, 2, 6 Author Orcid Image
Article Authors Cited by (19) Tweetations (2) Metrics

Journals

  1. Van Citters A, Holthoff M, Young C, Eck S, Cullinan A, Carney S, O'Donnell E, King J, Govindan M, Gustafson D, Tomlin S, Holmes A, Bradley A, Oliver B, Wilson M, Nelson E, Barnato A, Kirkland K. Feasibility and Usability of a Web-Based Peer Support Network for Care Partners of People With Serious Illness (ConnectShareCare): Observational Study. JMIR Formative Research 2025;9:e70206 View
  2. Cho H, Cho E, You S, Sefcik J, Hodgson N, Demiris G. Understanding Digital Literacy of Persons With Dementia and Their Caregivers: A Scoping Review and an Evolutionary Concept Analysis of Empirical Studies. Journal of Applied Gerontology 2026;45(4):742 View
  3. Blomberg O, Sami A, Farrand P, Sörensdotter R, Svedin F, Brantnell A, von Essen L, Åberg A, Woodford J. Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study. Dementia 2026;25(4):801 View
  4. Oviedo D, Haughbrook R, Culjat C, Ramirez Surmeier L, Tratner A, Carreira M, Villarreal A, Harmon S, Batista O, Meng Z, Millender E, Xavier Hall C, Britton G. Ethical disclosure of biomarkers for Alzheimer risk in Latin American participants. Frontiers in Dementia 2025;4 View
  5. Rosell J, Miranda-Castillo C, Araya A, Betti-Cortés I, Sepúlveda-Caro S, Zipper-Aguiló N. Digital Caregivers: Exploring Internet Use and Well-being among Informal Dementia Caregivers. Journal of Population Ageing 2026;19(1):187 View
  6. Suvish , Ghamari M, Sundaram S. Digital Dementia: Smart Technologies, mHealth Applications and IoT Devices, for Dementia-Friendly Environments. Journal of Sensor and Actuator Networks 2025;14(6):112 View
  7. Alaboson J, Coffey L, Maguire R. A mixed methods cross-sectional study of peer support needs and barriers among multiple sclerosis caregivers in Ireland. Journal of Health Psychology 2026;31(9):3792 View
  8. Schwedler L, Ostermann T, Ehlers J, Hohenberg G. Digital Support for Family Caregivers: Potential and Challenges of a Hypothetical AI Care Companion. Healthcare 2026;14(5):586 View
  9. Kinchin I, Dupont C, Mayan I, Chen Y, Leroi I, Sanchez A, Epenge E, Georgiou E, Grigorova P, Haas A, Karanja W, León T, Milte R, Tripathi K, Adrion E. The global landscape of online dementia resources. npj Dementia 2026;2(1) View
  10. Li Q, Buckley B, Lucey R, Quaid H, Barry M, Zhu Y, Walsh K, Hynes S. Understanding caregivers’ experiences and perspectives on online support: a qualitative study. Aging & Mental Health 2026:1 View
  11. Li L, Zhou H, Gao X, Chen K, Wang Q. Can the Use of Telehealth Guidance Services Reduce Depressive Symptoms Among Family Caregivers of Older Adults with Cognitive Impairment? A Moderated-Mediation Model. Healthcare 2026;14(9):1234 View
  12. Stratton L, Moczygemba W, Zimmerman S, Cattell M, Eichenberger L, Griff M, Fazio S. Provider Perspectives on the Design, Implementation, and Impact of Technology on Person-Centered Dementia Care: Insights From the Alzheimer’s Association Dementia Care Provider Roundtable. Journal of Applied Gerontology 2026;45(1_suppl) View
  13. Munthe H, Napsiah , Siahaan A. Invisible Work, Digital Solidarity: Gendered Emotional Labor and the Organization of Care in Indonesia. Gender, Work & Organization 2026 View
  14. Cipolletta S, Franzin C, Rossi V, Lai F. Interventions to Reduce Loneliness and Social Isolation Among Informal Caregivers of People With Cognitive Decline: A Systematic Review. Health & Social Care in the Community 2026;2026(1) View
  15. Lee T, Leshed G, Wethington E. Giving Care, Seeking Help: Examining the Role of Online Social Platforms for Remote Mental Health Supporters. Proceedings of the ACM on Human-Computer Interaction 2026;10(6):1 View
  16. Ni C, Park J, Li Y, Qadir S, Huang S, Powers J, Hiner J, Leung V, Commiskey P, Song L, Chen Q, Wisniewski P, Malin B, Yin Z. One Question, Four Voices: How Advice for Alzheimer's Caregiving Differs Between Caregivers, Clinicians, and Large Language Models. Proceedings of the ACM on Human-Computer Interaction 2026;10(6):1 View
  17. Yang M, Yang F, Liu S, Zheng J, Li W, Zhou Y, Lu S, Zhong S, Ke X, Lou V, Cong Z. Social media use and positive aspects of caregiving: a longitudinal test of the social compensation hypothesis. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences 2026;81(10) View

Books/Policy Documents

  1. Rosell J, Araya A, Miranda-Castillo C, Ángel-Hernández P, Sepulveda-Caro S. Human Aspects of IT for the Aged Population. View

Conference Proceedings

  1. Goel D, Goyal A, Duddu V, Pal O, Rodriguez V, Brown D, Karkar R, Yoo D, Saha K. Proceedings of the 2026 ACM Conference on Human-AI Complementarity and Alignment. When AI Says "I have been in similar situations": Synthetic Lived Experience in Peer-like Caregiver Support View