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The Digital Availability of US Departments of Corrections’ Research Policies: Cross-Sectional Analysis

The Digital Availability of US Departments of Corrections’ Research Policies: Cross-Sectional Analysis

Of available policy information, we evaluated for the presence of policies for (3) staff recruitment, (4) incarcerated people’s recruitment, (5) staff consent, (6) incarcerated people’s consent, (7) staff stipends/payment, and (8) incarcerated people’s stipends/payment. Criteria were piloted on 15 states to ensure interrater reliability (>75%) before assessing the remaining 35, with a final interrater reliability of 94.4%. All data were stored in Qualtrics [4].

Jesse Martinez-Kratz, David Manning, Noel Vest, Jason Glenn, Lauren Brinkley-Rubinstein, Alysse Wurcel

JMIR Form Res 2025;9:e76835


Effectiveness of Telehealth Versus In-Person Informed Consent: Randomized Study of Comprehension and Decision-Making

Effectiveness of Telehealth Versus In-Person Informed Consent: Randomized Study of Comprehension and Decision-Making

This consent form explained the nature of the study to evaluate participants’ perceptions of the My Chart patient portal’s usability and differences in consent understanding between teleconsent and traditional methods. The participants were adults who were users of My Chart, a prominent web-based patient portal. Participation in this study was voluntary.

Saif Khairat, Paige Ottmar, Prabal Chourasia, Jihad Obeid

J Med Internet Res 2025;27:e63473


Implications of Public Disclosure of Personal Information in a Mobile Alert App for People Living With Dementia Who Go Missing: Qualitative Descriptive Study

Implications of Public Disclosure of Personal Information in a Mobile Alert App for People Living With Dementia Who Go Missing: Qualitative Descriptive Study

No other individuals (ie, care recipients or care partners) were present during the interviews with people living with dementia as these individuals had the ability to consent and respond to questions. Before the interview began, the researcher introduced herself, the overarching study [3] in which the current project was embedded, and the purpose and procedures, and written informed consent was obtained.

Adebusola Adekoya, Christine Daum, Noelannah Neubauer, Antonio Miguel-Cruz, Lili Liu

JMIR Aging 2025;8:e64847


Technological Adjuncts to Streamline Patient Recruitment, Informed Consent, and Data Management Processes in Clinical Research: Observational Study

Technological Adjuncts to Streamline Patient Recruitment, Informed Consent, and Data Management Processes in Clinical Research: Observational Study

In this paper, we share our experience using technological adjuncts to streamline participant identification, recruitment, consent, and data management processes for an observational clinical research study. These strategies allowed us to complete our study recruitment goal ahead of schedule and in a cost-effective, resource-optimized way.

Jodie Koh, Stacey Caron, Amber N Watters, Mahesh Vaidyanathan, David Melnick, Alyssa Santi, Kenneth Hudson, Catherine Arguelles, Priyanka Mathur, Mozziyar Etemadi

JMIR Form Res 2025;9:e58628


Commentary on “Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line”

Commentary on “Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line”

Here, I focus on two: consent for research, and safeguards against commercial use. I provide facts and invite reconsideration of the paper’s treatment of consent and data safeguards (sharing, use, and commercialization) under the lens of potential bias and exploitation. “Bias is any trend or deviation from the truth in data collection, data analysis, interpretation and publication which can cause false conclusions. Bias can occur either intentionally or unintentionally” [2].

Timothy D Reierson

J Med Internet Res 2024;26:e42144


Authors’ Reply: The University Medicine Greifswald’s Trusted Third Party Dispatcher: State-of-the-Art Perspective Into Comprehensive Architectures and Complex Research Workflows

Authors’ Reply: The University Medicine Greifswald’s Trusted Third Party Dispatcher: State-of-the-Art Perspective Into Comprehensive Architectures and Complex Research Workflows

For this reason, we built our platform around the core components Enterprise Identifier Cross-Referencing (E-PIX), Generic Pseudonym Administration Service (g PAS), and Generic Informed Consent Service (g ICS), and we are grateful that these components are available as open versions. Consequently, we only covered the functionalities supported by these core components in the Requirements section.

Eric Wündisch, Peter Hufnagl, Peter Brunecker, Sophie Meier zu Ummeln, Sarah Träger, Marcus Kopp, Fabian Prasser, Joachim Weber

JMIR Med Inform 2024;12:e67429


The University Medicine Greifswald’s Trusted Third Party Dispatcher: State-of-the-Art Perspective Into Comprehensive Architectures and Complex Research Workflows

The University Medicine Greifswald’s Trusted Third Party Dispatcher: State-of-the-Art Perspective Into Comprehensive Architectures and Complex Research Workflows

Their work is based on University Medicine Greifswald’s well-established software components for record linkage (E-PIX [Enterprise Identifier Cross-Referencing]), pseudonymization (g PAS [Generic Pseudonym Administration Service]), and consent management (g ICS [Generic Informed Consent Service]) [2].

Martin Bialke, Dana Stahl, Torsten Leddig, Wolfgang Hoffmann

JMIR Med Inform 2024;12:e65784


Short-Form Video Informed Consent Compared With Written Consent for Adolescents and Young Adults: Randomized Experiment

Short-Form Video Informed Consent Compared With Written Consent for Adolescents and Young Adults: Randomized Experiment

After signing consent for the study, participants were randomly assigned to 1 of 2 groups: the short-form video consent group (experimental condition) or the written consent group (control condition).

Aliyyat Afolabi, Elaine Cheung, Joanne Chen Lyu, Pamela M Ling

JMIR Form Res 2024;8:e57747


Data Ownership in the AI-Powered Integrative Health Care Landscape

Data Ownership in the AI-Powered Integrative Health Care Landscape

Furthermore, there are several other challenges: Ambiguity around consent and control: Individuals interacting with IHC and AI systems may struggle to understand how their data are collected, used, and shared. Consent mechanisms might be opaque, leaving users unsure if they retain any control over their information [50].

Shuimei Liu, L Raymond Guo

JMIR Med Inform 2024;12:e57754