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Targeting earlier provision in the journey of a carer was a common suggestion, ensuring that the intervention becomes part of postdiagnostic support. This could include linking with general practices, health centers, and carer centers. The consensus was that, as dementia progresses, caring needs placed on the carer will become too demanding to allow Care Fit to be as effective or easy to implement.
J Med Internet Res 2025;27:e56739
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While there appears to be a large volume of literature reporting on studies of psychosocial interventions for carers of patients with cancer, this body of work is complex and fragmented, and it is challenging to draw clear conclusions about the evidence for specific types of programs or carer groups. The result is that carers remain undersupported, with limited evidence of the effective interventional approaches.
JMIR Res Protoc 2024;13:e56403
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Instead of answering, the patient turned to the carer (refer to screengrab 2 in Figure 5), softly asking “what?” (indicated with the degree symbols) and expecting the carer to perform an interactional repair on the physician’s question. The carer (offscreen) repeated the physician’s verification question in line 8.
J Med Internet Res 2024;26:e51695
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If I were a male carer [...] I might feel slightly alienated [...]. So, the fact that they are not represented is not particularly ideal.
Concern about complex wording was a common theme in caregivers’ and staffs’ reactions to Pi B and redesign recommendations. These connect with the TFA dimensions of intervention: Burden, Coherence, Self-Efficacy, and Effectiveness. Some struggled to interpret the step-by-step instructions in Pi B Action Plans.
Caregiver: So, [...]
JMIR Form Res 2024;8:e52389
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