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Online Self-Management Support for Family Caregivers Dealing With Behavior Changes in Relatives With Dementia (Part 2): Randomized Controlled Trial

Online Self-Management Support for Family Caregivers Dealing With Behavior Changes in Relatives With Dementia (Part 2): Randomized Controlled Trial

A Dutch nationwide survey found that about 3 in 4 family caregivers of people with dementia experienced problems dealing with changes in their relative’s behavior or mood, in both the initial and the later stages of the disease [5]. Self-management refers to individuals’ ability to manage the symptoms, treatment, physical and psychosocial consequences, and lifestyle inherent in living with a chronic disease. In dementia care, self-management often involves the family caregivers [6].

Judith G Huis in het Veld, Bernadette M Willemse, Iris FM van Asch, Rob BM Groot Zwaaftink, Paul-Jeroen Verkade, Jos WR Twisk, Renate Verkaik, Marco M Blom, Berno van Meijel, Anneke L Francke

J Med Internet Res 2020;22(2):e13001

Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study

Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study

In total, 81 family caregivers participated in the RCT (major [n=27], medium [n=27], or minor [n=27] intervention arms). Inclusion criteria for the specialized dementia nurses were: (1) a Bachelor’s or Master’s degree in nursing, and (2) advanced training in dementia care. In total, 4 nurses participated. Family caregivers were randomly allocated to 1 (major), 2 (medium), or 3 (minor) intervention arms.

Judith G Huis in het Veld, Iris F M van Asch, Bernadette M Willemse, Paul-Jeroen Verkade, Anne Margriet Pot, Marco M Blom, Rob B M Groot Zwaaftink, Anneke L Francke

J Med Internet Res 2019;21(10):e13002

Online Self-Management Support for Family Caregivers to Help Them Manage Behavior Changes in Their Relative With Dementia: Study Protocol for a Randomized Controlled Trial and a Process Evaluation

Online Self-Management Support for Family Caregivers to Help Them Manage Behavior Changes in Their Relative With Dementia: Study Protocol for a Randomized Controlled Trial and a Process Evaluation

A Dutch study [9] found that about three quarters of the family caregivers of persons with dementia experienced problems in dealing with changes in the behavior or mood of their relative, in both the initial and later stages of the disease. In a recent focus group study, family caregivers reported that what they found most difficult was constantly having to switch between different strategies and that they had to keep their relative constantly occupied and distracted [10].

Judith G Huis in het Veld, Bernadette M Willemse, Iris FM van Asch, Rob BM Groot Zwaaftink, Paul-Jeroen Verkade, Nienke J Veldhuijzen, Renate Verkaik, Marco M Blom, Anneke L Francke

JMIR Res Protoc 2017;6(11):e239