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Both a lawful basis for processing, as stated in Article 6(1) of the GDPR, and a special category condition for processing in compliance with Article 9(2) of the GDPR are necessary [8].
In general, consent is the starting point when processing special category data, and consent in the sense of the GDPR must meet a range of requirements: it must be specific, freely given, informed, and unambiguous [8].
J Med Internet Res 2023;25:e42131
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Trust in the appropriate and responsible reuse of data plays a pivotal role in determining whether permission is given to reuse the data. Developing and implementing a data governance framework are crucial for enhancing trust [10,11]. An adequate governance framework can be regarded as one of the several pillars of trust. In this study, we define a “data governance framework” as a set of rules and regulations determining who can use the data, for what purposes, and under which conditions.
J Med Internet Res 2023;25:e38929
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Pacmed, a Dutch organization developing and implementing ML-based decision support in health care, developed, together with the consortium that conducted this research, a CDSS to aid GPs with the treatment choice for patients with a UTI. On the basis of the EHR data from UTI observations in the Nivel Primary Care Database, ML-based classifiers were constructed to estimate the probability of success of the 8 antibiotics commonly used for an individual patient with a UTI.
JMIR Med Inform 2022;10(5):e27795
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Moreover, in countries where primary care has a gatekeeper function, patients’ primary care EHR holds a complete record of morbidity and medication of a defined list of patients (most gatekeeping systems are also list systems, where general practitioner [GP] practices have a defined list of patients that they are supposed to care for), and thus, it provides an excellent opportunity to assess the benefit-risk balance of medication when complemented with PROs.
JMIR Med Inform 2022;10(3):e33250
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Many European countries, including the Netherlands and the United Kingdom, already have a long history of using EHRs of GPs as a data source for morbidity estimates [1,2,4-6].
The extent to which EHRs of GPs are a valid data source to assess the health status of the general population depends on how primary care is organized in a country.
JMIR Med Inform 2019;7(3):e11929
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Possible Sources of Bias in Primary Care Electronic Health Record Data Use and Reuse
These developments provide a foundation for using routine EHRs in support of a “learning health system” (LHS) [21,22]. An LHS is a system in which knowledge generation and reapplication is a natural product of the health care delivery process and leads to continuous improvement in outcomes and institutional performance [23].
J Med Internet Res 2018;20(5):e185
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Establishing a National Syndromic Surveillance System among Asylum Seekers
Establishing a National Syndromic Surveillance System among Asylum Seekers
Online J Public Health Inform 2017;9(1):e62003
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