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Developing an Online Community Advisory Board (CAB) of Parents From Social Media to Co-Design an Human Papillomavirus Vaccine Intervention: Participatory Research Study

Developing an Online Community Advisory Board (CAB) of Parents From Social Media to Co-Design an Human Papillomavirus Vaccine Intervention: Participatory Research Study

In addition, CAB members were compensated for their time and participation in the project, receiving US $40 in e-gift cards per meeting (US $20 for completing a workbook and US $20 for attending the meeting). In May 2020, as a part of a targeted social media recruitment campaign on Twitter, 17 parents completed the CAB screening survey. Of the 17, 6 responded to requests for an interview through videoconferencing.

Regan M Murray, Shawn C Chiang, Ann C Klassen, Jennifer A Manganello, Amy E Leader, Wen-Juo Lo, Philip M Massey

JMIR Form Res 2025;9:e65986

Exploring Racial Disparities in Awareness and Perceptions of Oncology Clinical Trials: Cross-Sectional Analysis of Baseline Data From the mychoice Study

Exploring Racial Disparities in Awareness and Perceptions of Oncology Clinical Trials: Cross-Sectional Analysis of Baseline Data From the mychoice Study

Consent was verified via an e-consent using REDCap (Research Electronic Data Capture; Vanderbilt University), a web-based application developed to capture data for research [67,68]. Consented patients were randomized to intervention conditions via REDCap and completed a baseline survey prior to viewing any intervention content. The baseline survey assessments were web-based and were conducted through REDCap.

Ariel Hoadley, Linda Fleisher, Cassidy Kenny, Patrick JA Kelly, Xinrui Ma, Jingwei Wu, Carmen Guerra, Amy E Leader, Mohammed Alhajji, Paul D’Avanzo, Zoe Landau, Sarah Bauerle Bass

JMIR Cancer 2024;10:e56048

Dimensions of Misinformation About the HPV Vaccine on Instagram: Content and Network Analysis of Social Media Characteristics

Dimensions of Misinformation About the HPV Vaccine on Instagram: Content and Network Analysis of Social Media Characteristics

Misinformation characteristics can be identified and segmented for focused interventions through opinion-leader or peer outreach education programs. Communication strategies that only leverage conventional health experts and authorities are ill-equipped to address misinformation on social media. The rise of “expert patients” and “expert parents” has been in part due to their proficient use of social media network features, along with the saliency and relatedness of their stories.

Philip M M Massey, Matthew D Kearney, Michael K Hauer, Preethi Selvan, Emmanuel Koku, Amy E Leader

J Med Internet Res 2020;22(12):e21451