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Increasing Physical Activity via Provider Support and Engagement Using a Digital Health Platform in Adults With Multiple Sclerosis: Protocol for a Randomized Controlled Trial

Increasing Physical Activity via Provider Support and Engagement Using a Digital Health Platform in Adults With Multiple Sclerosis: Protocol for a Randomized Controlled Trial

Participants (n=106) are being recruited from the University of Washington Medicine Multiple Sclerosis Center, a comprehensive, interdisciplinary center that provides specialty care (including neurology, rehabilitation medicine, and psychology) for >3000 patients with MS per year. All clinic patients are offered opportunities to participate in clinical research through a coordinated research registry recruitment effort that is a standard element of the clinic’s patient flow.

Dawn M Ehde, Sarah B Simmons, Kevin N Alschuler, Tracy E Herring, Andrew T Humbert, Susan R Robles, Otari Ioseliani, Karla Landis, Laurie B Kavanagh, Cindy Y Lin

JMIR Res Protoc 2025;14:e72213


Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research: Mixed Methods Usability Study

Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research: Mixed Methods Usability Study

Usability interview participant demographics (N=15). We assessed the number of participants who reported each identified usability challenge (Table 3). Five frequently observed challenges were noted; 2 were related to content in the toolkit: participants had difficulty interpreting instructions and participants had difficulty condensing content from the full consent document into the visual KI template.

Eliana Charlotte Goldstein, Zoe Troubh, Krista E Cooksey, Molly Volkmar, Victor Catalan Gallegos, Kimberly A Kaphingst, Clara N Lee, Ashley J Housten, Jessica Mozersky, Mary C Politi

JMIR Form Res 2025;9:e76740


User Experiences of Limb-Worn Wearable Devices for Monitoring Parkinson Disease Motor Function and Blood Pressure: Usability Study

User Experiences of Limb-Worn Wearable Devices for Monitoring Parkinson Disease Motor Function and Blood Pressure: Usability Study

Clinical and demographic data of the study participants enrolled in the usability study of limb-worn wearable devices for monitoring PD motor function and blood pressure in Ireland in the period 2021-2023 (N=6). a MDS-UPDRS: Movement Disorder Society - Unified Parkinson’s Disease Rating Scale. b6-CIT: 6-Item Cognitive Impairment Test.

Lorna Kenny, Marco Sica, Colum Crowe, Lauren O'Mahony, Brendan O'Flynn, David Scott Mueller, Salvatore Tedesco, John Barton, Suzanne Timmons

JMIR Form Res 2025;9:e73423


Super Users’ Reported Best Practices for Coordinating Proactive Integrated Use of Virtual Health Care Resources: Prospective Concurrent Mixed Methods Human-Centered Design Study

Super Users’ Reported Best Practices for Coordinating Proactive Integrated Use of Virtual Health Care Resources: Prospective Concurrent Mixed Methods Human-Centered Design Study

Initial interviews were held using Microsoft Teams with VHR super users (N=15) across 5 specialty services. Representative snowball sampling was used, through the on-site virtual health resource center, to recruit clinical champion participants based on their knowledge and proactive integrated use of VHRs, as identified by their clinical team members within each specialty care service.

Jolie N Haun, Rachel C Benzinger, Julie McMahon-Grenz, Lisa M Ballistrea, S Angel Klanchar, Rebecca S Bolinski, Justin T McDaniel

J Med Internet Res 2025;27:e81414


Nonrandom Missingness in Child Race and Ethnicity Records and the US Federal Data Standards: Pooled Analysis of Community-Based Child Health Studies

Nonrandom Missingness in Child Race and Ethnicity Records and the US Federal Data Standards: Pooled Analysis of Community-Based Child Health Studies

Descriptions of the 8 studies included in the pooled analysis of parent-reported race and ethnicity of child participants (N=8087). a Study names have been deidentified to protect participant privacy and unpublished data. b MA: Massachusetts; CA: California; KY: Kentucky; MS: Mississippi; SC: South Carolina; RI: Rhode Island. The institutional review board of Tufts University exempted this study from review because it was deemed not human participant research.

Danielle M Krobath, Norbert L W Wilson, Adolfo G Cuevas, Elena N Naumova, Jennifer M Sacheck, Sydney A Tyler, Christina D Economos

JMIR Public Health Surveill 2025;11:e65660


Supporting Oral and Long-Acting HIV Preexposure Prophylaxis Decision-Making Among Pregnant Women (MyChoice Intervention): Protocol for 2 Pilot Randomized Controlled Trials

Supporting Oral and Long-Acting HIV Preexposure Prophylaxis Decision-Making Among Pregnant Women (MyChoice Intervention): Protocol for 2 Pilot Randomized Controlled Trials

Exact statistical methods to estimate 95% CIs will be used in cases of small cell counts or analysis of continuous measures where n Primary study end points evaluated in both studies include intervention acceptability and appropriateness assessed via survey measures. The additional primary end point of intervention feasibility will be evaluated in study 1. Descriptive statistics will be calculated for primary outcomes among intervention arm participants.

Friday Saidi, Symone Welch, Twambilile Phanga, Carlie Sulpizio, Lusubiro Paile, Doris Ngo’ma, Mercy Tsidya, Mary Chindebvu, Grace Nkhoma, Lovemore Nkhalamba, Ivy Kaliati, Nomthata Mkochi, Humphrey Chakala, Wiza Kumwenda, Agatha Bula, Picrina Winner, Tapiwa Munthali, Alinda Nyamaizi, Jessica Keys, Suzanne Maman, Lisa Pearce, Carol Golin, Benjamin H Chi, Lauren M Hill

JMIR Res Protoc 2025;14:e76442