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Endometriosis Communities on Reddit: Quantitative Analysis

Endometriosis Communities on Reddit: Quantitative Analysis

These include evidence of the benefits of sharing one’s story within a community [49,65], the need for assistance with treatment regimens and appointments [14,31], the uncertainty experienced by patients related to their symptomatology [13], as well as the value of receiving validation regarding health concerns and symptoms [8]. An existing study of a PCOS subreddit has also found concordance between the OHC user population and research-identified patient cohorts [17].

Federica Bologna, Rosamond Thalken, Kristen Pepin, Matthew Wilkens

J Med Internet Res 2025;27:e57987