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Currently submitted to: JMIR Aging

Date Submitted: Sep 23, 2020
Open Peer Review Period: Sep 23, 2020 - Nov 18, 2020
(currently open for review)

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

  • Richard Sztramko; 
  • Anthony J Levinson; 
  • Andrea Wurster; 
  • Rita Jezrawi; 
  • Branavan Sivapathasundaram; 
  • Alexandra Papaioannou; 
  • David Cowan; 
  • Joye St. Onge; 
  • Sharon Marr; 
  • Christopher Patterson; 
  • Tricia Woo; 
  • Lori Mosca; 
  • Cynthia Lokker

ABSTRACT

Background:

Over one million Canadians are affected directly or indirectly by dementia. Informal caregivers (CGs) of people with dementia (PwD) provide the majority of health-based care to PwD. Providing this care requires knowledge and access to resources, which CGs often do not receive. CGs are looking online for dementia education and support.

Objective:

The primary objective was to evaluate the impact of online educational tools on informal CG self-efficacy. Secondary outcomes of interest are CG quality of life, CG burden/distress, CG stress, CG depression, CG anxiety, and identifying effective processes for online educational tool development.

Methods:

The search protocol, inclusion and exclusion criteria, and methods of analysis were all specified a priori. A systematic search of CINAHL, MEDLINE, EMBASE, and PubMed was performed to March 2018. The literature was periodically surveyed post-initial search to account for newly published articles. 32 articles were included.

Results:

Despite some studies reporting mixed perceived value for CG, multiple studies reported encouraging results. There is some evidence in the literature that online interventions improve CG self-efficacy, depression, dementia knowledge, and quality of life; and decrease caregiver burden.

Conclusions:

: Online educational tools appear to be effective at improving CG-related outcomes. Developers are encouraged to involve CGs and health care professionals at all stages of tool conceptualization and development; and evaluate the effectiveness of online tools with robust RCTs that focus on how increased knowledge modifies CG-related outcomes.


 Citation

Please cite as:

Sztramko R, Levinson AJ, Wurster A, Jezrawi R, Sivapathasundaram B, Papaioannou A, Cowan D, St. Onge J, Marr S, Patterson C, Woo T, Mosca L, Lokker C

Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

JMIR Preprints. 23/09/2020:24529

DOI: 10.2196/preprints.24529

URL: https://preprints.jmir.org/preprint/24529

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