Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Monday, March 11, 2019 at 4:00 PM to 4:30 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?


Currently submitted to: JMIR Aging

Date Submitted: Jul 23, 2019
Open Peer Review Period: Jul 26, 2019 - Sep 6, 2019
(closed for review but you can still tweet)

NOTE: This is an unreviewed Preprint

Warning: This is a unreviewed preprint (What is a preprint?). Readers are warned that the document has not been peer-reviewed by expert/patient reviewers or an academic editor, may contain misleading claims, and is likely to undergo changes before final publication, if accepted, or may have been rejected/withdrawn (a note “no longer under consideration” will appear above).

Peer-review me: Readers with interest and expertise are encouraged to sign up as peer-reviewer, if the paper is within an open peer-review period (in this case, a “Peer-Review Me” button to sign up as reviewer is displayed above). All preprints currently open for review are listed here. Outside of the formal open peer-review period we encourage you to tweet about the preprint.

Citation: Please cite this preprint only for review purposes or for grant applications and CVs (if you are the author).

Final version: If our system detects a final peer-reviewed “version of record” (VoR) published in any journal, a link to that VoR will appear below. Readers are then encourage to cite the VoR instead of this preprint.

Settings: If you are the author, you can login and change the preprint display settings, but the preprint URL/DOI is supposed to be stable and citable, so it should not be removed once posted.

Submit: To post your own preprint, simply submit to any JMIR journal, and choose the appropriate settings to expose your submitted version as preprint.

Person with Dementia-informal caregiver dyad wellbeing: Implications of a Connected Health platform in Dementia home care.

  • Estefania Guisado-Fernandez; 
  • Catherine Blake; 
  • Laura Mackey; 
  • Dermot Power; 
  • Diarmuid O'Shea; 
  • Brian Caulfield; 



Dementia is a neurodegenerative chronic condition characterized by a progressive decline in a person’s memory, thinking, learning skills, and ability to perform activities of daily living (ADLs). Previous research has indicated that there are many types of technology interventions available in the literature that have shown promising results in improving the disease progression, disease management, and the PwD and their informal caregivers wellbeing, thus facilitating the Dementia care and living. Technology driven home care interventions, such as Connected Health (CH), could offer a convenient and low-cost alternative to traditional home care, providing the informal caregiver with the support they may need at home while caring for a PwD, improving their physical and mental wellbeing.


This study reports a longitudinal quantitative analysis of a preliminary set of PwD-caregiver dyads involved in the “Connected HEalth Sustaining home Stay” in Dementia project (CHESS). We aim to understand the implications of a CH platform on the wellbeing of the PwD-informal caregiver dyads, and to create a multidimensional wellbeing profile of the PwD-informal caregiver dyad.


During a year time, comprehensive assessments to evaluate the PwD-informal caregivers’ wellbeing were conducted every three months following the CHESS project protocol, using the international and standardized validated questionnaires. Participants demographic information was analyzed using descriptive statistics and presented by means and standard deviation. Non-parametric Friedman test was used to analyse outcomes changes and progression in the PwD-caregiver dyads, and to determine if those changes were statistically significant.


There were no significant changes in the PwD or their caregivers’ wellbeing over the year of follow up, with the majority of the PwD-caregiver dyads remaining stable. The only instances in which significant changes were observed were for the functional status in the PwD and sleep quality in their caregivers. In each of these measures post hoc pairwise comparisons did not indicate that the changes observed were related to the deployment of the CHESS platform.


Connected Health can have a role in helping Dementia home care and to promote the PwD and their informal caregivers’ wellbeing, but our platform did not provide that to our participants. More research needs to be conducted in the long term to understand these population wellbeing progression, factors of influence, and the potential impact that new technologies can have on it.


Please cite as:

Guisado-Fernandez E, Blake C, Mackey L, Power D, O'Shea D, Caulfield B

Person with Dementia-informal caregiver dyad wellbeing: Implications of a Connected Health platform in Dementia home care.

JMIR Preprints. 23/07/2019:15600

DOI: 10.2196/preprints.15600


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.