TY  - JOUR
AU  - Malhotra, Chetna
AU  - Yee, Alethea
AU  - Ramakrishnan, Chandrika
AU  - Kaurani, Sanam Naraindas
AU  - Chua, Ivy
AU  - Lakin, Joshua R
AU  - Sim, David
AU  - Balakrishnan, Iswaree
AU  - Ling, Vera Goh Jin
AU  - Weiliang, Huang
AU  - Ling, Lee Fong
AU  - Pollak, Kathryn I
PY  - 2024
DA  - 2024/12/18
TI  - Development and Usability of an Advance Care Planning Website (My Voice) to Empower Patients With Heart Failure and Their Caregivers: Mixed Methods Study
JO  - JMIR Aging
SP  - e60117
VL  - 7
KW  - advance care planning
KW  - decision aid
KW  - heart
KW  - website
KW  - heart failure
KW  - care plan
KW  - caregiver
KW  - usability
KW  - acceptability
AB  - Background: Web-based advance care planning (ACP) interventions offer a promising solution to improve ACP engagement, but none are specifically designed to meet the needs of patients with heart failure and their caregivers. Objective: We aimed to develop and assess the usability and acceptability of a web-based ACP decision aid called “My Voice,” which is tailored for patients with heart failure and their caregivers. Methods: This study’s team and advisory board codeveloped the content for both patient and caregiver modules in “My Voice.” Using a mixed methods approach, we iteratively tested usability and acceptability, incorporating feedback from patients, caregivers, and health care professionals (HCPs). Results: We interviewed 30 participants (11 patients, 9 caregivers, and 10 HCPs). Participants found the website easy to navigate, with simple and clear content facilitating communication of patients’ values and goals. They also appreciated that it allowed them to revisit their care goals periodically. The average System Usability Scale score was 74 (SD 14.8; range: 42.5-95), indicating good usability. Over 80% (8/11) of patients and 87% (7/8) of caregivers rated the website’s acceptability as good or excellent. Additionally, 70% (7/10) of HCPs strongly agreed or agreed with 11 of the 15 items testing the website’s acceptability. Conclusions: “My Voice” shows promise as a tool for patients with heart failure to initiate and revisit ACP conversations with HCPs and caregivers. We will evaluate its efficacy in improving patient and caregiver outcomes in a randomized controlled trial. Trial Registration: ClinicalTrials.gov NCT06090734; https://clinicaltrials.gov/study/NCT06090734 
SN  - 2561-7605
UR  - https://aging.jmir.org/2024/1/e60117
UR  - https://doi.org/10.2196/60117
DO  - 10.2196/60117
ID  - info:doi/10.2196/60117
ER  -